Back to school, back to school.....

Fucking fuck fuck FUCK FUCK FUCK!!!!!!!!!!!!!!

Ok so it's not too bad just yet. I have had 3 of my 4 classes today and so far so good. This entry cannot be long as I am writing from the libs on campus and have to meet Katey at 2:30. I am sorry but i cannot allot my time properly between the both of you.

First things first: I GOT MY NEW BUS PASS. Yippee.

Secondly; the doctors appt yesterday: Grand, wonderful, specacular, marvelous, amazing. My doc said my bone scan showed me to be NORMAL, the results from my last sputum samples were NORMAL, and the results from the sleep lab were NORMAL. As well, she told me she went to a transplant convention type thingy in TO and mentioned me (moi? wow i'm honoured!) and the docs there said considering my case (what with no immunity and all) I should have a very successful transplant and post transplant life! Generally, my doctor seems really excited so that makes me happy! Who knew new organs made people happy but they do i tell you!

BUT - she said when i go for my consult in 15 days, despite being an 'excellent candidate' they MAY tell me i am TOO HEALTHY, which i honestly hope isn't the case. I have heard of people with higher PFTs and FEV1s than me(the amount of air you can forcefully breathe out in 1 second) and they got listed! I feel passionately that i DO get listed b/c all this walking around campus shit today has me winded.

AND YES I WORE MY O2 TO SCHOOL AND ON THE BUS!!!!!!! Can i get some applause please and thank you? THANK YOU!!!! I know, i am happy but it is definately different. People don't really look at you - but at the same time who knows if they have noticed at all anyway?

Oh school....i hate to say it but i am glad to be back.

Britney's err..........not so comeback

Holy granola did anyone watch the MTV Movie Awards opening? Well i am watching it now (it is almost half past 9pm est) and the 'comeback' was a little less than hyped up as the media made it out to be. I was let down! I like Brit as a performer - if anyone can perform their ass (or bare vagina) off, it's her. But this performance was kind of like, "Yea.....um.......... i just don't give a shit" and she kind of mumbled, looked confused, and quite clearly lip-synced her way through the set.

The set, on the other hand, was good and sparkley. Performance? A little shoddy. Man when i was a kid this award show was worth staying up for! Now, it's all crap! Oh well......

What else? I cannot see any pictures I have posted on this blog, let alone post them. For some reason posting pics is not working either. Annoying, confusing, frustrating, strangle-worthy to say the least. I hope it sorts itself out! I wanna post pics of stuff damnitt!

That's all for now i'm afraid. I have my appt with my respirologist tomorrow and will update as soon as i get home - or when i feel it - which ever i feel is the best option. This is all for now, unless something bizzare and scandalous happens on the MTV Awards and i'll be back as soon as i can!

Happy birthday dad and Jenna!

Pics!

As promised here are some pics from my hospital/ other Thursday medical stuff day last week. Enjoy!

My IV site, after they found a new vein - yippee!

My IV pole with my 'stuff' on it

My new neb cups!

My Nebulizer Compressor who lives on the floor

My new 'thing' of Hyptertonic Saline (oooh... ahhh....)
2 of my Oxygen tanks sitting neatly in a popcorn bin

The Monster - and Zoey

My Massively Huge Exciting Day

WOO HOO!

Well lets start with another list:

1) Parking at the hosp. was FREE today! FREE I TELL YOU! Did you see that? I'm sorry i don't think you did so i shall announce it again: FREE! Parking is usually $7! REDICULOUS! Angels sang today when i made this discovery.

2) It took ONE, yes ONE, poke and the IV went in! Usually it's 3 tries and then blood return commences. But nope, we found a new vein which worked just spenldid and did its job. An hour and 15 minutes later i was freed back into the world.

3) My nebulizer was FREE. Last time I got it, it was $30. I came heavily armed with a debit card but alas the sweet man at ProResp informed me my neb was free. He whispered it with such urgency that after i protested and asked if he was sure, a small portion of me couldn't help but feel like i was stealing.

Yes people, the sky opened up and the angels looked down at me today and luck was sent in my direction via an imaginary escalator. Wow. Not only that but it was incredibly hot and windy ( i love wind storms) so it was just miraculous.

Now i shall post some pics LATER when my connection is better!

Lots of stuff

Ok firstly: HAPPY 21st BIRTHDAY KRYSTAL! Let me echo Katey when i say, "Thank you for being born." Tonight was a lot of fun and i look fwd to Sat! I am glad it was another scorching hot 30*C degree day to boot! WOO!

Tomorrow is a busy day for moi. Let me start by announcing what i need to do:

1) Go for gamma infusion

2) Pick up new vial of HTS

3) Pay visit to RT

4) Pick up new nebulizer while at RTs office and;

5) Inquire about getting a new O2 'thingy'.

You are probably wondering what i mean by O2 'thingy' and I am quite curious myself. This 'thingy' goes at the top of the other 'thingy' on the oxygen tank (the silver part much like the needle at the top of the CN Tower). This 'thingy' attaches to another 'thingy', and this 'other thingy' is the one i want replaced. The second 'thingy' is how you turn the O2 on. Well, mine is pretty medeval and weighs a ton which accounts for half the wait of my bag when i haul it around. I have seen pics of new 'thingys' and will inquire about this tomorrow. I would love to get a new 'thingy' to replace the old 'thingy' as it would make my life much easier, modern, and quite frankly, lighter. If my wish is granted and i am lucky enough to receive a new 'thingy', i will grace you all and post a picture of it.

What else what else what else? The other night i had the 'pleasure' of helping my dad haul a water heater down to the basement, after we were lucky enough to have ours burst in the middle of the night. I was the only one home (my sister was but she doesn't really help much sometimes) and i hate the thought of my dad struggling to move this monster by himself, so i offered to help.

Holy heaviness to say the least. I was under the impression that this water heater would just be the plastic shell - not the whole thing! But once again i proved myself wrong and it was actually the whole thing! I saw my life flash before my eyes when i had a vision of the water heater collapsing on my chest and crushing me underneath. Alas, that did not happen and the only injuries i sustained was having my hand squished against the wall when i helped move it down the stairs. I was very out of breathe and thought my chest would explode but that didn't not happen...though i kind of wish it did as it would have releived a lot of pressure!

Anywho, that's all for now. I am off and will update tomorrow about my numerous appts....

Wait. Before i go, i must send another msg to Rosie. Rosie was pretty much abused by her doctor the other day when they struggled and fought to find a vien in her weak little arms. Eventually when they found one, they left quite the mess. I have seen photographic evidence and she's got about a 10 inch long bruise on her arm from the ordeal(s) and a nice red splotch where the IV needle went in. One time, when my nurse Arlene came back from being on leave from Carpel Tunnel surgery, i had the pleasure of being her 'first' IV post-surgery.

I will never forget the smile on her face as she grabbed the IV needle and pointed it towards my arm and proclaimed, "You'll have to excuse me, I'm a little shakey today...."

I need social acceptance classes...

...for myself.

It's not that i'm socially unaccepting, I'm not (unless it's PDA or people having outright sex then no - that's disgusting), but for myself, i can't accept one fact. It's the same fucking fact that bothers the absolute shit out of me and always bothers me: i need o2 in public.

I had to go to campus today for an appt and i also wanted to scope out text books early before the little bastards got their contaminated hands on them. I had my o2 packed in my humungous bag and i wrestled my way through the jungle of first years. I parked as close as i could (parking is free first week people!) and i hadn't walked 10 ft before i began to get SOB. Shit, I thought. I slowed down. Put it on, put it on, put it on! rational thought said. No! my superficial mind screamed. Never! I felt like a schizophrenic arguing with myself. Alas, superficiality won and i spent a good hour suffering and wanting to fall to the ground and die. I thought i would suffocated. I felt like i was being strangled, but i'm too much of a moron to give in to this fucking thing. AHHHHHHHHHHHH!

You'd think i would have had more of an issue with the fact that i have a humungous disgusting zit on my chin, and that that would be enough to keep me in. But alas it was not and i completely forgot about it until i looked in the mirror after i returned from campus. Oh well. What can you do about that, eh?

I will forever wrestle with this stupid issue. Until it gets colder and coats are in at least. Once it's colder i don't think it will be such a monstrous issue to me the way it is now. At least then i can hide the tubing in my coat, right? Yes, i've thought of it that much. I am so bothered by this, i think, b/c wearing O2 in public will be like officially annoucing that i am sick and need a lung transplant, and even though i don't look sick, deep down inside, in the muckiness and scarredness and hardened bits of my lungs, me myself and I, are sick.

I now bend over and whoever wants to kick me in the ass can. But please, kick some common sense with it too, please!

Thanx!

Not Much Under the Sun

....is that the right expression?

Oh well.

Either way, i am back. For those of you who missed me, no, i did not fall and get run over by a bus, or mysteriously sink into the ground and disappear. I have actually been here at home pondering what to write about. Nothing has happened really. I ran out of Zithro on Friday (and didn't know it) only to discover last night when i was supposed to take it that i had no refills. Oh well.

Howard is still in the pond. Next to Howard the Frog, we have Chippy, yup you guessed it: HE'S A CHIPMUNK! He's got a fat little head that he stuffs with nuts, and his head looks disporportionately bigger than his body and his tail is pretty much a stump. He lives under a rock beside our pond and pretty much has dug himself a home. That little bastard.

Currently I sit here, listening to Dick in a Box and talking to Rosie. Rosie is 1 year, 2 months and 3 days post transplant. She has a chest infection from going on vacation and told me her function has 'dropped' to 90%.

90%. Yes. Meanwhile i sit here at 27%. Something is wrong but oh well. I hope Rosie gets better and bounces up and beyond 100% in no time. I can't wait to be 90% one day!

What else? School starts in a week. I have an appt tomorrow at school to meet with the CSD councellor and will look into purchasing my mass amounts of textbooks. Blah.

Back to school. Back to school. What can I say? The leaves are beginning to change too. Who knew it would happen so fast? Halloween stuff is already up in the stores!

Crazy!