Eva's Blog: http://65redroses.livejournal.com/
Eva is waiting for her second tx, and needs it badly. A Canadian like myself, she has a documentary that aired at the Toronto International Film Festival and opened to rave reviews. It will be airing on CBC on Nov. 16th: http://www.cbc.ca/documentaries/passionateeyeshowcase/2009/65redroses/
I encourage everyone to watch it! I myself have never seen it but have been wanting to since I found out about it this past year. Send your love and support and prayers that Eva gets that call she so desperately needs! Thanks so much!
Thursday, November 12, 2009
Wednesday, November 11, 2009
And dream I do....
This is the dream I had this morning:
In the midst of a zombie attack, my dad and I went to the Science Centre. We could only go for a while b/c I had a clinic appt at 2 that interfered w w/e it was we were seeing. In the parking lot my phone rang. It was my co-ordinator. She was excited. She was calling to tell me that while I would probably be mad, my clinic appointment was cancelled. It was cancelled b/c the results of my last bronch showed no rejection or infection, and that the appt would be a waste of my time and essentially pointless. I was very happy.
Enter real life: I woke up this morning and had my morning routine. Around 10:45 I called asking if the results of last weeks bronch were back. She called back 15 minutes later. She informed me that my results showed no rejection or infection, and no fungal infection. I was so happy that I cried.
So yes. You may laugh at my spidey senses or not beleive them, but they are real nonetheless!!
And here's an excerpt/story or w/e about a real hallucination I had while recovering in the ICU:
The walls were white. They were so white they were silver blue. My room was cold and I lay in bed. I was nothing but a head; I had no body. Everything was a winter wonderland to me even though it was the middle of summer, even though I had no concept of time.
I looked up to the right. The light bulb. It was the brightest light I had ever seen. All around me was awash in white and time seized to exist. A ghost. A ghost in my lightbulb, looking down at me, watching me....protecting me? I knew she was there but I also knew she wasn't real. She was blonde and stared at me in the lightbulb...The brightest lightbulb I had ever seen...
The brightest lightbulb, although it had no bulb, just a ghost.
In the midst of a zombie attack, my dad and I went to the Science Centre. We could only go for a while b/c I had a clinic appt at 2 that interfered w w/e it was we were seeing. In the parking lot my phone rang. It was my co-ordinator. She was excited. She was calling to tell me that while I would probably be mad, my clinic appointment was cancelled. It was cancelled b/c the results of my last bronch showed no rejection or infection, and that the appt would be a waste of my time and essentially pointless. I was very happy.
Enter real life: I woke up this morning and had my morning routine. Around 10:45 I called asking if the results of last weeks bronch were back. She called back 15 minutes later. She informed me that my results showed no rejection or infection, and no fungal infection. I was so happy that I cried.
So yes. You may laugh at my spidey senses or not beleive them, but they are real nonetheless!!
And here's an excerpt/story or w/e about a real hallucination I had while recovering in the ICU:
The walls were white. They were so white they were silver blue. My room was cold and I lay in bed. I was nothing but a head; I had no body. Everything was a winter wonderland to me even though it was the middle of summer, even though I had no concept of time.
I looked up to the right. The light bulb. It was the brightest light I had ever seen. All around me was awash in white and time seized to exist. A ghost. A ghost in my lightbulb, looking down at me, watching me....protecting me? I knew she was there but I also knew she wasn't real. She was blonde and stared at me in the lightbulb...The brightest lightbulb I had ever seen...
The brightest lightbulb, although it had no bulb, just a ghost.
Tuesday, November 10, 2009
The Scary House on Scary Lane....and 100 stairs
First, I have to state how proud I am of myself for having gotten all my meds (temp, blood sugar testing, gastro pill and the 1/2 hour wait until i can eat, and then the wretched nebulized amphotericin included) and all my pills taken and completed by 9:15 this AM. I started at 9 and was done everything by 9:15 so the fact that I woke and got straight to work paid off! Very proud of myself! Had some orange juice, a banana, and Nature Valley bar for breakfast. Go me!
Ok, onto the pics!
The Ascent: This is not all 100 stairs: after you get passed the steel part at the very top, there's a little bridge you must cross, and then the rest of the stairs (about 25-35) follow. Next slide please...
WE MADE IT! The view from the top...Unfortunately, kinda ugly:
The Scary, Scary House, on Scary, Scary Lane...
The gates...says "WYOMING 1860"
Sunday, November 8, 2009
The last of the summer days...
While friends like Alice in South Africa and Evlyn in Australia are rejoincing in the onset of summer weather, we here in Ontario are on our very, very, very last days of it - if it's even still around. The last two days have been wonderfully delicious, with temps of around 15*C and higher. Perfect for being outdoors and getting things done and generally having windows open and loving the fact that we can still have them open without someone bitching about how cold it's making the house. Today was no exception. It was apparently 18*C and today was the day that I walked 100 stairs with Krystal! And walk them we did! I got pics but still have to upload them. But let me tell you this people: it was damn easy. I wasn't out of breath at all. You'd think 100 stairs would be daunting, considering this coming from a girl who could barely scale 2 stairs let alone 98 additional ones a little over 3 months ago. But alas my kittens today I did! And then some!
We had no additional location in mind with regards to where we were going to walk once we reached the top, so we just kept going. That destination had us going up - to the big houses - the Victorian mansion houses - which reside in the highest part of the city. History says that in our city, the biggest houses (built during the 1800's) were built on the top of the hill so that in the event of a flood, the poor people who lived at the bottom would suffer the effects and essentially die first. Cruel, but very Victorian. And holy fuck you should see theses houses! They are both scary and immaculate at once! I think the pic I stealthily and creepily got was of a gothic style house. We tried getting one last Christmas when we again - stealthily and creepily - went Christmas Light Gawking and this particular house failed to show up on film. That's how creepy it is!
But never fear, we located the house when there was still light and I got 3 pics! I will post them as well - probably tomorrow in a separate post bc posting pics and getting them to act how i want them to sometimes turns out to be a royal bitch of a problem.
Tonight also saw me utilizing these beautiful creatures called lungs. I took the dogs for a walk with both parents and me and Madyson ran a few times. RAN. I've already run, but still, 3 months ago i was still out of it from surgery. Running was not the first thing on my mind. I'm pretty sure nothing was on my mind but the pain i was in and how much i wanted food. And it was as Maddy and I were running that I had this thought: here I am, breathing with someone else's lungs. Unlike a liver or a kidney, where you can't feel them as they work, with lungs, you can. You can consciously make the effort to inflate and deflate them. I can inhale as deeply as i want, and hold it, and hold it, and hold it, all on my own will. But these aren't mine realy: i wasn't born with them. They were entrusted to me b/c my donor was awesome and had the compassion to save others lives in the event of their untimely death.
Again, 'thank-you' fails to encompass how this really is for me. You can't thank someone for that. You just can't. I ran tonight people, and I walked 100 stairs and then some. You cannot wrap that in a box and place in under a tree or anything. It is basic human kindness in the most extreme degree. It may seem simple but it was the most beautiful thing I could think of, on one of the most beautiful days of November.
So yes, all in all (despite the fact that i'm sitting on 2 days worth and 6 laxatives with 0 results), it's been a beautiful weekend. I had my bedroom window open all day and my room smells like summer time. I plan on washing my bedding and placing it on the line tomorrow to dry, as the forcast calls for 20*C! I finished my letter to Jenna up in the Yukon and will get around to mailing it tomorrow. Being the good friend that I am, i hunted in the dark of my backyard for a maple leaf to enclose in the letter and stepped in dog shit in the process. This resulted in me needing to wash my foot, which is another summer time fav thing of mine to do. So it's not all bad.
But if tomorrow yeilds 2 days worth of attempting to shit, I will light a tree and sing a song and reflect on the devine act performed by angels! If not, try, try, try again.
(maybe this is my punishment for asking that guy in recovery if he was sure he didn't shit himself. Oh fuck.)
We had no additional location in mind with regards to where we were going to walk once we reached the top, so we just kept going. That destination had us going up - to the big houses - the Victorian mansion houses - which reside in the highest part of the city. History says that in our city, the biggest houses (built during the 1800's) were built on the top of the hill so that in the event of a flood, the poor people who lived at the bottom would suffer the effects and essentially die first. Cruel, but very Victorian. And holy fuck you should see theses houses! They are both scary and immaculate at once! I think the pic I stealthily and creepily got was of a gothic style house. We tried getting one last Christmas when we again - stealthily and creepily - went Christmas Light Gawking and this particular house failed to show up on film. That's how creepy it is!
But never fear, we located the house when there was still light and I got 3 pics! I will post them as well - probably tomorrow in a separate post bc posting pics and getting them to act how i want them to sometimes turns out to be a royal bitch of a problem.
Tonight also saw me utilizing these beautiful creatures called lungs. I took the dogs for a walk with both parents and me and Madyson ran a few times. RAN. I've already run, but still, 3 months ago i was still out of it from surgery. Running was not the first thing on my mind. I'm pretty sure nothing was on my mind but the pain i was in and how much i wanted food. And it was as Maddy and I were running that I had this thought: here I am, breathing with someone else's lungs. Unlike a liver or a kidney, where you can't feel them as they work, with lungs, you can. You can consciously make the effort to inflate and deflate them. I can inhale as deeply as i want, and hold it, and hold it, and hold it, all on my own will. But these aren't mine realy: i wasn't born with them. They were entrusted to me b/c my donor was awesome and had the compassion to save others lives in the event of their untimely death.
Again, 'thank-you' fails to encompass how this really is for me. You can't thank someone for that. You just can't. I ran tonight people, and I walked 100 stairs and then some. You cannot wrap that in a box and place in under a tree or anything. It is basic human kindness in the most extreme degree. It may seem simple but it was the most beautiful thing I could think of, on one of the most beautiful days of November.
So yes, all in all (despite the fact that i'm sitting on 2 days worth and 6 laxatives with 0 results), it's been a beautiful weekend. I had my bedroom window open all day and my room smells like summer time. I plan on washing my bedding and placing it on the line tomorrow to dry, as the forcast calls for 20*C! I finished my letter to Jenna up in the Yukon and will get around to mailing it tomorrow. Being the good friend that I am, i hunted in the dark of my backyard for a maple leaf to enclose in the letter and stepped in dog shit in the process. This resulted in me needing to wash my foot, which is another summer time fav thing of mine to do. So it's not all bad.
But if tomorrow yeilds 2 days worth of attempting to shit, I will light a tree and sing a song and reflect on the devine act performed by angels! If not, try, try, try again.
(maybe this is my punishment for asking that guy in recovery if he was sure he didn't shit himself. Oh fuck.)
Saturday, November 7, 2009
HAPPY 3 MONTHS TO ME!!!!!
Welp, as you can tell by the counter at the top of my blog: IT'S OFFICIALLY MY 3 MONTHS POST-TX DATE TODAY! Woo frigging hoo! And how did i celebrate but by going to the St. Jacobs Farmers Market with 3/4 of the girls (the last 1/4 being ensconsed up in the wildnerness and currently unavailable to participate in such adventures).
Things i realized while Farmers Marketing today:
1) Don't eat breakfast before you go, and don't eat breakfast there either. It's quite possible to survive off all the samples you will consume (fresh fresh! right Krystal?)
2) Wear proper runners. I learned the hard way. I don't want to get up off the couch.
3) Bring a camera, as Krystal did. She got plenty of pics. I brought mine but did not participate in any picture taking myself, though I was in several of Krystals. Maybe one day, when she locates her long lost cable cord, those pics will find there merry way onto facebook and saved/stolen onto my computer.
4) HAVE FUN!
5) Oh, and bring cash and spend lots!
Things I bought:
- 2 bags of Kettle Corn (sooooo good)
- 1 Christmas stair ornament for my sis and her bf
- 1 loaf of veggie cheese bread
And i think that's it.
Katey's mother sent her with a list ("get a roast if possible") and Katey was able to purchase about 99% of the things sent for. Krystal bought a pie and we loaded it all into the trunk of the Cherrybomber. We happened upon a grey/silver Ford Tempo on the way home (apparently i'm the only one who spies these things from miles and miles away) and all in all, it was a fab day! Weather was great and I may take one of the dogs for a walk if my body wants me to get up off the couch. I feel run down and im' sure it's a combination of the past week i've had with my assessment, then both flu shots, and needing to go for my Gamma this coming week. It's pretty normal so i'm not worried. My temp, FEV1 and everything is fine so that's good!
Also, for any one who reads like the bookwhore that I am, have you read the Into the Wilderness series? I'm on the second book and can't get into it. I've forfeited it for the time being and picked up Diana Gabaldon's new book An Echo in the Bone. WEEEEEE! If you've read the second book of Sara Donati's Into the Wilderness (Lake in the Clouds I beleive it's called) let me know if you felt the same way please!
Hope u all have a happy Saturday! Tomorrow I am going to concquer 100 stairs with Krystal!
Things i realized while Farmers Marketing today:
1) Don't eat breakfast before you go, and don't eat breakfast there either. It's quite possible to survive off all the samples you will consume (fresh fresh! right Krystal?)
2) Wear proper runners. I learned the hard way. I don't want to get up off the couch.
3) Bring a camera, as Krystal did. She got plenty of pics. I brought mine but did not participate in any picture taking myself, though I was in several of Krystals. Maybe one day, when she locates her long lost cable cord, those pics will find there merry way onto facebook and saved/stolen onto my computer.
4) HAVE FUN!
5) Oh, and bring cash and spend lots!
Things I bought:
- 2 bags of Kettle Corn (sooooo good)
- 1 Christmas stair ornament for my sis and her bf
- 1 loaf of veggie cheese bread
And i think that's it.
Katey's mother sent her with a list ("get a roast if possible") and Katey was able to purchase about 99% of the things sent for. Krystal bought a pie and we loaded it all into the trunk of the Cherrybomber. We happened upon a grey/silver Ford Tempo on the way home (apparently i'm the only one who spies these things from miles and miles away) and all in all, it was a fab day! Weather was great and I may take one of the dogs for a walk if my body wants me to get up off the couch. I feel run down and im' sure it's a combination of the past week i've had with my assessment, then both flu shots, and needing to go for my Gamma this coming week. It's pretty normal so i'm not worried. My temp, FEV1 and everything is fine so that's good!
Also, for any one who reads like the bookwhore that I am, have you read the Into the Wilderness series? I'm on the second book and can't get into it. I've forfeited it for the time being and picked up Diana Gabaldon's new book An Echo in the Bone. WEEEEEE! If you've read the second book of Sara Donati's Into the Wilderness (Lake in the Clouds I beleive it's called) let me know if you felt the same way please!
Hope u all have a happy Saturday! Tomorrow I am going to concquer 100 stairs with Krystal!
Thursday, November 5, 2009
On today's menu...
1) 11 hours of sleep
2) meds done immediately upon waking up like a good soldier
3) food consumption - too much
4) 1 chunk of antsyness/ restlessness
5) 1 vaccine of H1N1 accompanied by a side of seasonal flu vaccine
6) grocery shopping for ambitious supper idea
7) 1 strong realization that i don't have any legit reasons to complain today..
8) 1 strong realization that i should take that back b/c i will find something to complain about...
9) 1 long moment spent at the slider watching the dog attempt to eat all the snow off the deck
10) 4 endless moments telling me i should blog about something positive
So here I am. It's the 5th of November and before i begin i want to extend a HAPPY 1 YEAR POST DOUBLE LUNG TX to ALEX!!!!!!!!! I shall post ur blog link!
So yeah i woke up in a slightly better mood today. I say 'slightly better' b/c i'm feeling restless and antsy if i sit - like i should be doing something. I know restlessness is a side effect of the new gastro med i started, and seeing as i have to take it 4 times a day...could i be experiencing it already? Probably. I have the munchies today, and i don't know if this new med is laced with pot or what but it kind of sucks b/c i'm not hungry, i just have nothing to do. I'd go for a walk but the weather is changing ever 2 seconds pretty much. I did however realize we have some severly underused yoga/pilates DVDs in the basement so i may drag those up to my room at some point tonight and do them? We'll see! This weekend is supposed to be fab so i'm looking forward to getting out and walking some trails around here.
So yes, like a good, diligent citizen of society, I got my flu and H1N1 vaccine today. I've never had a vaccine of any kind and today i lost my vaccine virginity. And let me tell you, it's pretty exciting. That, and the fact that on the documentation they gave me that states i got the vaccine, is says 'Pandemic'. I'm part of a pandemic people - i'm officially part of history. That's pretty sweet in my book. After i got the vaccine I sat in a chair b/c u have to wait for 15 minutes. My dad came in shortly after me and got his b/c i called him saying there was no line. As we sat there, i morbidly pointed out in an excited manner that this was 'so 1918...'. He probably thinks i have some mental issue. Well i'm sorry but it had 'cool' written all over it...cots on the floor for ppl who can't handle the shots, nurses giving needles and handing out sheets stating u got it...pretty nifty.
But the bottom line i guess if any one gets excited over 'pandemic' mode is pretty sick in the head. I guess that's me. Oh well. Accept it.
Um...so i'm making homemade veggie soup tonight for supper, as well as Cajun Caeasar salad! How sexy eh? It's pretty exciting i won't lie, and when i was at the grocery store hauling all my shit around i felt pretty fabulous. I didn't even think that i wasn't out of breath but i did think about it when i hauled my shit into the car and sat. It was easy and there was no struggle. I love it. I guess the antysness/restlessness comes when i have nothing to do but sit on my ass.
Must get off ass. Must.
2) meds done immediately upon waking up like a good soldier
3) food consumption - too much
4) 1 chunk of antsyness/ restlessness
5) 1 vaccine of H1N1 accompanied by a side of seasonal flu vaccine
6) grocery shopping for ambitious supper idea
7) 1 strong realization that i don't have any legit reasons to complain today..
8) 1 strong realization that i should take that back b/c i will find something to complain about...
9) 1 long moment spent at the slider watching the dog attempt to eat all the snow off the deck
10) 4 endless moments telling me i should blog about something positive
So here I am. It's the 5th of November and before i begin i want to extend a HAPPY 1 YEAR POST DOUBLE LUNG TX to ALEX!!!!!!!!! I shall post ur blog link!
So yeah i woke up in a slightly better mood today. I say 'slightly better' b/c i'm feeling restless and antsy if i sit - like i should be doing something. I know restlessness is a side effect of the new gastro med i started, and seeing as i have to take it 4 times a day...could i be experiencing it already? Probably. I have the munchies today, and i don't know if this new med is laced with pot or what but it kind of sucks b/c i'm not hungry, i just have nothing to do. I'd go for a walk but the weather is changing ever 2 seconds pretty much. I did however realize we have some severly underused yoga/pilates DVDs in the basement so i may drag those up to my room at some point tonight and do them? We'll see! This weekend is supposed to be fab so i'm looking forward to getting out and walking some trails around here.
So yes, like a good, diligent citizen of society, I got my flu and H1N1 vaccine today. I've never had a vaccine of any kind and today i lost my vaccine virginity. And let me tell you, it's pretty exciting. That, and the fact that on the documentation they gave me that states i got the vaccine, is says 'Pandemic'. I'm part of a pandemic people - i'm officially part of history. That's pretty sweet in my book. After i got the vaccine I sat in a chair b/c u have to wait for 15 minutes. My dad came in shortly after me and got his b/c i called him saying there was no line. As we sat there, i morbidly pointed out in an excited manner that this was 'so 1918...'. He probably thinks i have some mental issue. Well i'm sorry but it had 'cool' written all over it...cots on the floor for ppl who can't handle the shots, nurses giving needles and handing out sheets stating u got it...pretty nifty.
But the bottom line i guess if any one gets excited over 'pandemic' mode is pretty sick in the head. I guess that's me. Oh well. Accept it.
Um...so i'm making homemade veggie soup tonight for supper, as well as Cajun Caeasar salad! How sexy eh? It's pretty exciting i won't lie, and when i was at the grocery store hauling all my shit around i felt pretty fabulous. I didn't even think that i wasn't out of breath but i did think about it when i hauled my shit into the car and sat. It was easy and there was no struggle. I love it. I guess the antysness/restlessness comes when i have nothing to do but sit on my ass.
Must get off ass. Must.
Wednesday, November 4, 2009
Some shit...
This entry doesn't come from the happiest point of view....contrary to the post that preceeds it. I mean i'm happy but i'm annoyed and frustrated, blah.
I'll start with the happy news: since Monday i've been having my 3 months assessment! Monday was the busiest day for: bloods, xray, CT, PFTs, clinic. Tues saw the gastric emptying test, where I had the fortune of consuming a fried egg saturated in radioactive goo and 2 peices of toast, with an added toxic topping of transplant medication to the mix. And today - the final day - saw my 3 months bronchoscopy, which I hope in all honesty, yeilds no rejection or infection!
So far things are good, tho there was some confusion over some cyclosporin levels. Also, the thing that i'm pissed off about, is that bloody gastric emptying test has shown yet again complete and utter failure of my stomach.
Let me break it down for you: you come in at 9am and eat ur radioactive egg. You get an xray. You're told to fuck off and come back in an hour for another xray. Then you fuck off for another hour and come back for another xray, to see how your radioactive friend is moving along. If all is well - meaning the egg has made the journey from stomach to intestine safetly- you're free to go and your stomach is awesome. If you're stomach is a complete tool - like mine apparently - you must come back in 2 hours to see if things have moved along.
In my case, they didn't. They merely crawled along. After 1 hour i still had 90% of the stuff in my stomach. After 2 there was 60%, and after 4 i had 10% left. To be fair, the breakfast they gave me was significantly larger than what i usually have, and all i did was sit on my ass for the whole time literally staring at the sky while i thought the stuff was digesting (and i must state that the egg wasn't bad even though they left out the fun part, the yellow goo). I was asked if i felt full all the time. I kind of lied and said no, b/c it depends on what i eat. But basically, they do this test to see if you have reflux b/c that can cause you to asperate into your lungs which is very very bad.
After 4 boring hours i was released and sent to skip on my merry way home. I thought all was fine but allegedly it wasn't. The egg was still festering away in my stupid crippled stomach. I got a call from my tx co-ordinator today saying i had delayed gastric emptying and that I must go on another med to help things move along. I was pissed, though in retrospect I guess I shouldn't be. I won't lie when I confess i was pissed b/c I was worried that starting such medication would yeild terrifying results: fatness. Yup, I said it. But i've realized if things move along faster than just sitting like a dormant volcano in my stomach then it probably won't happen. So we'll see.
Todays bronch was well. No vomitting or hallucinations. I did have to put the bronch to a hault right before as i ran to the bathroom for an emergency pee. I felt bad for holding things up but my doc was happy to see me running. The unfortunate part came afterwards in recovery when I was placed between two men who had just had colonoscopies. I've never been near anyone after they had one but i learned that after one is done, the patient is encouraged to fart as much as possible. They must lay on their sides and force it out - big and strong - before they can go home So there I was, coughing up blood (it always happens) while these 2 men tried to fart as much as humanly possible. At one point, me still being mildy sedated and not being held accountable for my actions or words, the guy next to me let out the grossest, loudest, wettest fart in my direction that i had ever heard, that I spoke up and said to him, " You better check that you didn't shit yourself".
I didn't look at him when I said it, i merely stared wide-eyed at the ceiling in utter disgust, in hopes that any smell didn't waft in my direction. I just wanted to get out of there and not fall victim to fart fumes.
What else? I feel like i need to get shit together, like i'm extremely unorganized. Now that i'm done with pulm. rehab I need to work out more. Granted, this week it's been harder b/c of my 3 months assessment, but i'm not about to let myself melt into a blob of goo. Must join a gym and/or walk more.
I don't think there's anything else for me to bitch about. If there is, you'll hear about it.
I'll start with the happy news: since Monday i've been having my 3 months assessment! Monday was the busiest day for: bloods, xray, CT, PFTs, clinic. Tues saw the gastric emptying test, where I had the fortune of consuming a fried egg saturated in radioactive goo and 2 peices of toast, with an added toxic topping of transplant medication to the mix. And today - the final day - saw my 3 months bronchoscopy, which I hope in all honesty, yeilds no rejection or infection!
So far things are good, tho there was some confusion over some cyclosporin levels. Also, the thing that i'm pissed off about, is that bloody gastric emptying test has shown yet again complete and utter failure of my stomach.
Let me break it down for you: you come in at 9am and eat ur radioactive egg. You get an xray. You're told to fuck off and come back in an hour for another xray. Then you fuck off for another hour and come back for another xray, to see how your radioactive friend is moving along. If all is well - meaning the egg has made the journey from stomach to intestine safetly- you're free to go and your stomach is awesome. If you're stomach is a complete tool - like mine apparently - you must come back in 2 hours to see if things have moved along.
In my case, they didn't. They merely crawled along. After 1 hour i still had 90% of the stuff in my stomach. After 2 there was 60%, and after 4 i had 10% left. To be fair, the breakfast they gave me was significantly larger than what i usually have, and all i did was sit on my ass for the whole time literally staring at the sky while i thought the stuff was digesting (and i must state that the egg wasn't bad even though they left out the fun part, the yellow goo). I was asked if i felt full all the time. I kind of lied and said no, b/c it depends on what i eat. But basically, they do this test to see if you have reflux b/c that can cause you to asperate into your lungs which is very very bad.
After 4 boring hours i was released and sent to skip on my merry way home. I thought all was fine but allegedly it wasn't. The egg was still festering away in my stupid crippled stomach. I got a call from my tx co-ordinator today saying i had delayed gastric emptying and that I must go on another med to help things move along. I was pissed, though in retrospect I guess I shouldn't be. I won't lie when I confess i was pissed b/c I was worried that starting such medication would yeild terrifying results: fatness. Yup, I said it. But i've realized if things move along faster than just sitting like a dormant volcano in my stomach then it probably won't happen. So we'll see.
Todays bronch was well. No vomitting or hallucinations. I did have to put the bronch to a hault right before as i ran to the bathroom for an emergency pee. I felt bad for holding things up but my doc was happy to see me running. The unfortunate part came afterwards in recovery when I was placed between two men who had just had colonoscopies. I've never been near anyone after they had one but i learned that after one is done, the patient is encouraged to fart as much as possible. They must lay on their sides and force it out - big and strong - before they can go home So there I was, coughing up blood (it always happens) while these 2 men tried to fart as much as humanly possible. At one point, me still being mildy sedated and not being held accountable for my actions or words, the guy next to me let out the grossest, loudest, wettest fart in my direction that i had ever heard, that I spoke up and said to him, " You better check that you didn't shit yourself".
I didn't look at him when I said it, i merely stared wide-eyed at the ceiling in utter disgust, in hopes that any smell didn't waft in my direction. I just wanted to get out of there and not fall victim to fart fumes.
What else? I feel like i need to get shit together, like i'm extremely unorganized. Now that i'm done with pulm. rehab I need to work out more. Granted, this week it's been harder b/c of my 3 months assessment, but i'm not about to let myself melt into a blob of goo. Must join a gym and/or walk more.
I don't think there's anything else for me to bitch about. If there is, you'll hear about it.
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