My Double Lung Transplant

Friday, September 3, 2010

"We're on shit that could kill a horse"

Upon investigation of possible side effects of antirejection meds, Cassie and I accumulated this list:

Cellcept:

- rare untreatable brain disease
- can give you HIV
- lukemia
- lymphoma
- uable to control muscles

Prograf:
- can make you go into a coma
- seizures
- decreased pee
- weight gain
- back pain
- rash
- itchy
- hearburn
- vomitting

Cyclosporin:

- facial swelling
- hair growth
- high blood pressure
- kidney and liver probs
- headaches
- high cholesterol
- loss of appetite
- vomitting
- acne or oily skin
- the shakes
- joint pains and cramps
- weakness and anxiety
- tingling in face and extremities
- night sweats
- hearing loss

Prednisone:

- vision problems
- eye pain, redness or tearing
- sore throat
- fever, chills, cough, or other signs of infection
- seizures
- depression
- confusion
- muscle twitching or tightening
- shaking of the hands that you cannot control
- numbness, burning, or tingling in the face, arms, legs, feet, or hands
- upset stomach
- vomiting
- lightheadedness
- irregular heartbeat

...and the very best, lets all yell it out together!:

LOSS OF CONTACT WITH REALITY


Fucken eh! That's all I have to say about that! So my tx friends, when you're feeling down and out, or ready to smack a bitch, or get on board your spaceship, take a peek at this special little list and find some comfort in the fact that it's not really you that's making you feel so effed, it's your medication yo.

Upon other things, things are grand! My new job is amazing - seriously busy, with a confusing schedule, and lots of zooming around and the like, but i love it. Thanks to my affinity for hating people (ok that's a lie: they're assholes), dog walking is pretty rad. The time is good too, which is fab! Some early mornings which I don't mind, some live out of the city, some need to be seen 2 to 3 times a day, most of them walked for 30 minutes, some are only walked certain days of the week, all must be seen at or around the same time each day, it's good. And i have to squeeze in appts in the mean time. And squeeze in seeing Finn.

And learn to give myself injections. And keep a stupid log *shakes fist in anger*

But other than that, i wouldn't have it any other way! Oh, and school starts next week, and I'm going to be joining a walking group with a fellow tx friend.

Weeeeeeeee!!!!!!

Ok, off to fill my pill box.

4 comments:

Jess said...

I love how you're like "eff meds" then, I gotta go fill my med box :) hehe

Kelly said...

As much as I hate the meds too ... prednisone is fast becoming one of my favs ... LOL!

What's better than the 'freedom' of telling people EXACTLY what's on your mind, or just loosing it over shit ... aaaahhhh ... love the pred! But I must say, the loosing touch with reality ... that sounds awesome! LOL! I just love 'excuses' to say and do things I normally wouldn't ... and blame it on the meds ... hehe

Alice Vogt said...

How on earch can cellcept give you HIV if it's a STD you get from having sex with someone with AIDS?

Matt Todd said...

And dont forget about the increased sun sensitivity from some of those meds that with the increased risk of skin cancer.