My Double Lung Transplant

Monday, April 7, 2008

O2 24/7 now?

Well fuck.

Here's the story.

Lately, I'm tired all the time again. Not just "i -didn't -get -enough -sleep -lastnight" kinda tired, I'm talking about "this -sucks- why -am- I- so -tired- i slept -for- 9 hours" kinda tired. It's relentless, and it sneaks up on you. One minute you're fine and the next - BAM! "Well shit - we're tired".

When I wake up, I'll take a couple of minutes to get my brain adjusted to needing to focus. Once that happens, I take my oxygen off and make my way down stairs. About 1-2 hours after being awake, i become tired and it creeps on throughout the day. It's to the point now that i contemplate napping - and I'm not a napper.

When I shower I use oxyen, and I leave it on for about 2 hours (b/c that's how long i dick around for after my shower and that's how long it takes me to dry my hair). I take it off soon after i've dicked around and bored myself soul-less. Then the tiredness creeps up again on me.

It was today that I put 2 and 2 together: tiredness that comes on after taking away oxygen=problem. This problem must mean that i should probably be on o2 24/7. Does that upset me? No. Does it bother me? Not really. I guess i've had an inkling for a while, and since the rehab center is gonna hook me up with some liquid O2 hopefully, i won't have such an issue using it all the time and it'll be lighter for being outside.

I told my mum this revelation tonight when i made tea. I said that I should prob be on it 24/7 and that i notice i get tired after i take it off. My mum looked at me and said, "That's not good." and i looked at her and said, "That's lung disease for you."

I had something really funny to post about but i've completely forgotten. Again i've failed to study adequately but every friend i've spoken to is in the same boat so i don't feel so left out and unmotivated.

It was another nice spring day and i had some windows open. The house smells lovely as the air isn't so dry and stagnant anymore.

I heart spring-time. How exciting would it be that this time next year, I had new lungs!?!?

1 comment:

Alice said...

I'm dead sure you'll have new lungs this time next year! Yay! And you're prob right about the O2 thing. My next step after only sleeping on O2 was always wearing it at home. So I was only without O2 when I went out. That helps. Also, when I went out I just tried to conserve as much energy as possible. Walking as little as possible etc.