My Double Lung Transplant

Thursday, May 7, 2009

A Good Day

I'm feeling better today.

Since leaving the hosp, i feel about 20% better, which is ok. I can navagate the house better, and yes, you'll be thrilled to learn, that i've worn my O2 around the house ALL day. And i can honestly report that it's helped! I did the laundry and it helped by wearing it (i still got out of breath but it wasn't painful), ran the dishwasher, and so forth.

In my prednisone induced euphoria, I ate a whole pot of mac and cheese in sheer celebration. My knees woke me up at 5am so i took two Tylenol 2, which put me to sleep till 10am. Woke up at 10am and the pain was setting in, so I took another 2 Tylenol 2 which helped again...helped so much that i was a little bit high and felt light headed but that's ok. I think my knees are bothering me today b/c it's a little bit humid but that's ok. I will be alright.

Overall, I am much happier today. The pred face has shrunk, i don't feel like i'm going to give birth to a cannon, i'm not bloated or irritable. Overall, I am happy. I've gone some things around the house but have also taken it easy. I've read, blogged, chatted, had some pommegranate green tea, played piano....

That is my one concern: since leaving the hosp my hearing has felt funny. I don't know if the Cetafez IV antibiotic damaged my hearing or not. My doc knows that I've had issues with it in the past and that it's a concern of mine, and she would've told me off the bat if hearing loss would be a result of being on it. She didn't, and everything I've read online mentions nothing about otoxic effects so I think i'm ok. If anything, this 'loss' is temporary. Also, i think i've prob got wax in my ears (sorry, ew), and also, since my sinuses are so dried up, i can't clear them properly which is also making things sound fuzzy. To add to this, is the weather changing, so....I'm sure it's just a bunch of everything coming together to annoy me. It also doesn't help that i'm focusing on it, and thus probably making a bigger deal out of it than is probably worse....but oh well....I think i notice it more since I play piano by ear and found the piano slightly more quiet than usual today....

Again, it's prob just a combo of wax, blocked sinuses, and allergies. Hopefully that will change soon.

So all in all, I'm a happy girl and had a good day!

2 comments:

BreathinSteven said...

Hey Girlie...

Sorry about the wax -- hope that dissapates soon! I remember having temporary hearing issues with IV tobramycin -- and frankly, the Kraft "blue box" mac and cheese is one of my favorite dishes on the planet...

I'm glad you're a happy girl -- I'm glad your'e feeling 20% better... I hope your call comes soon. Believe it or not, it hurts when you hurt, but I don't want my hurt to stop until you're breathing with "real" lungs... You take care -- you're in my thoughts...

Love, Steve

Amy said...

lol to ear wax...like you have never said anything remotely disgusting before haha!

Glad you are feeling better and I hope it keeps up!!