I sit here in an utter state of shock. I am reeling and going through a withdrawal of such explosive proportions that I feel the need to share it with everyone now - before i forget.
As i was sitting with Carol today – doing nothing but feeling like i looked busy – she informed me, that she had been informed last week, that post transplant, (or the first year or so) you must firstly have no alcohol (gasp), no herbal tea (shriek) and worst of all, NO POP!
*falls on floor and promptly convulses*
WHAT THE FUCK?! Up until now i have not been informed of any dietary restrictions. Has anyone else had to deal with this? I know it differs from center to center and blah blah, but seriously? Lindsey told me her center told her she couldn’t dye her hair post-tx, or submerge her head in water when she swam. The no swimming dealio is fine by me, since i’m afraid of being eaten by a whale or a shark, but really?
When i got listed i asked if i would have any dietary restrictions. I was told NO. I asked if i ran the risk of developing diabetes. I was told NO. I did not ask if i could resume the lifestyle of a weekend alcoholic and party animal (ha!) nor did i admit to my addiction to coke and pepsi.
It kind of sucks. I don’t think i can function without pop. I’m serious. No alcohol, no herbal tea, that’s fine (wait does earl grey count b/c then we have a problem if it does). I know about the no grapefruit and no runny eggs dealio, but i’m a little irked at the pop.
We shall see. I'll run an inquiry at clinic on Monday. Yup, i go back. We’ll see how it goes. I’m feeling a bit better...i’m getting more heart pains but what else is new. I think Tobi is loosening its grip on me a bit and i can breathe a little easier.
This morning i actually woke up and my lungs were plastered to my chest wall...and not at the bottom like they usually are, they were stuck right at the front under my collar bone. I just lay there, with my hand over my chest, feeling the crackling, the pulling of lung tissue away from my chest wall...it went all the way down my sternum to the point that i didn’t know where it began and where it ended. It was everywhere.
In other news, it’s warm! It’s gonna be something like 19*C today, and i plan on sitting on the deck again today like a pig and reading in the sun. I’ve started my new Mary Queen of Scotland and the Isles book and so far it is tres good.
Hope everyone has a good Friday. After all, it is Friday!