My Double Lung Transplant

Monday, January 19, 2009

Clinic Schmlinic

Yeah you guessed it: I went to clinic today.


But before clinic I had physio, and lets refresh our memory with regards to the various ways i managed to embarass myself, shall we?

Number 1: I get there and immediately see Don's wife, although I wasn't sure if it was Don's wife since I didn't see Don, so instead of saying 'hi' (b/c Don's wife and I made eye contact 3 times I beleive) i just looked away and acted like I didn't see her as only I can do.

Number 2: I'm slaving away on the horrible bike -dying- when Don comes up to me. He tells me he's here for his 6 months work up and I say that's great, that I can't beleive it's been 6 months. I selfishly pointed out that I was still waiting, and I noted louder than usual, "Yeah! I guess it's like being pregnant EXCEPT WITH NO BABY AT THE END" whereupon the room went silent and Don etched himself away from me and left the room.

Number 3: In the clinic appt I met the doc, who I didn't understand at all b/c she spoke so fast. When she introduced herself to me she said, "Hi I'm Dr. such and such; I don't think we've met" to which I stupidly shouted, "HI I'M GOOD THANKS HOW ARE YOU TODAY WE HAVENT MET BEFORE!"

I swear to god.

Number 4: As I'm leaving I tell the nurse practitioner that I spoke to the guy who was in the Toronto Star who had the lung perfusion done (b/c he was on the bike at the same time I was). I told her that at first I didn't recognize him, but then blurted out, "OH YEAH YOU'RE THE GUY FROM THE PAPER!" and i told the nurse jokingly, "I think I scared him. He probably wanted to run away from me! HA HA HA" to which she went silent as well.

But although I had a string of unfortunate vocal events today (voice immodulation me thinks) my dad's moment trumps them all. I was at the clinic counter waiting restlessly, huffing and puffing, when my dad informed me he was going to the bathroom. So as I looked down the hall I caught a glimpse of my dad....and I watched helplessly as he walked straight into the women's washroom. I waited. No dad. Waited some more, trying not to laugh, until about 30 seconds later my dad emerges, finally realizing that he had gone into the wrong bathroom. To make it better, he left the women's washroom just as a sea of people filtered by and witnessed his grand exit.

It was marvelous.

That's about it. I go back in 2 months. It wasn't that exciting. Hoping lungs come before then. And I'm on Tobi again. Joy to the world.

OH YEAH! I also got to listen to my lungs with a stethoscope, and am now on the hunt for one. I will either buy one or con a nurse/physio person to give me one. Whatever comes first...but i'm pretty sure the option will be hospital theft.

Saturday, January 17, 2009

Random Googling

Admit it: you do it too.

You probably did it today, or did it last night, or may even be inspired to do it right after reading this post: the random google.

Usually I find myself randomly googling things late at night, usually Saturday, when i'm so tired but too stubborn to get to bed. And I don't randomly google things to obtain information per ce, I mostly randomly google images. Who doesn't like pictures right?

Currently I'm randomly googling pictures of Nova Scotia. Why? Why not? I've been there, and I frigging love it, and I want to go back. Up next: pictures of Newfoundland. Why? Because Jenna told me. Actually, I'm quite afraid of Newfoundland, b/c when I was a kid I had a dream that I fell off the side of Newfoundland and was dragged out to sea by a pod of humpback whales and was taken straight to the bottom. In the middle of the ocean. It's a touchy subject...

Which leads me to another frequent random image google of mine: whales. I love whales, and I'm completely terrified of them. Looking at images scares me even more, and reminds me why I stay the hell out of the water.

Another up and coming random image google will be the Halifax Explosion. Why? I don't know...when i was in NS we drove through where it happened and while you can't see any of the damage anymore (since it's been almost 100 years)it would still be cool to see some. And yes alright, morbid too. Also in this category of previous random image googles: Titanic. Timeless, and always exciting. Another random image google is this: 19th century. Very exciting.

And finally the last frequent random google, that I actually did again last Saturday: sharks. More preferably, big sharks, or shark attacks, or sharks in waves. I don't know why i've got such a preoccupation with shark images, i think again, like the whale thing, I'm terrified of them, and I like looking at pictures of the sea-beasts because of my morbid curiosity. BUT! It's a great time-passer while I sit here waiting for my transplant.

Enjoy your random google image search. I know you'll do it, and if you do, comment or post in the guest book what you searched. YAY!




Holy crap!

Or this random Titanic google!: http://images.google.com/imgres?imgurl=http://www.maritimequest.com/liners/titanic/photos/interior/06_titanic_cafe_parisien.jpg&imgrefurl=http://www.maritimequest.com/liners/titanic_interior_page_1.htm&usg=__tShN_w5ZC8lSElcmyfdo8cDgD7Y=&h=478&w=744&sz=113&hl=en&start=233&um=1&tbnid=BWS-qzI-HNaUJM:&tbnh=91&tbnw=141&prev=/images%3Fq%3DTitanic%26start%3D220%26ndsp%3D20%26um%3D1%26hl%3Den%26rls%3Dcom.microsoft:en-us:IE-SearchBox%26rlz%3D1I7ADBR%26sa%3DN

Thursday, January 15, 2009

Hard Attack

I awoke at roughly 4am this morning in a horrible amount of pain. It was isolated to the left side of my chest, under my left boob and down the middle of my sternum. It was a pinching, tight, stinging pain that was there when i held my breath, and was there when I breathed. It was inexorable.

I was having a heart attack.

Omg, I'm having a heart attack!
No, you're not; if you were having a heart attack you wouldn't be thinking - at least not rationally.
You're right.
Maybe I should tell mum and dad?
No, it's too late, they're asleep.

Try hitting yourself.
Oh! It's probably pleurisy....so i guess it's ok to go back to sleep.
Yeah, I'm so tired...

As i tried to decipher what exactly was happening to me, sleep eventually took over and I was out of it. Clearly, if i was having a heart attack i survived it. But I couldn't figure out what the pain exactly was. I still have it, though it's nowhere near as bad as it was last night. I've determined that it most like is the aforementioned (as noted in my wonderful thought bubble in italics), and am taking it easy.

I do have clinic at TGH on Monday, and will bring up the countless assaults that pleurisy has had on my person as of late. This just doesn't feel normal. The last time I had pleurisy -last month - I had actually had it for a solid week before it dawned on me what it was. I thought i just had a really sore back b/c i was sitting it weird positions or something. But no, it was in fact pleurisy. And in July when I had it for 13 days...I don't know. You would think that I've had it enough to know what it feels like when it strikes, but every time I've had it, it's felt completely different than the last time. The only constant with it (besides its constant presence) is the fact that it's incredibly painful, and you literally can feel it hovering over the area it's planning on attacking.

*sigh* Oh well. I haven't taken anything for the pain yet today. I am currently waiting for the oxygen company to come by and fill my liquid tanks.

That's about all for now. I'm going to go back to reading Vanity Fair and will sit here and conquer the pain...as well as conquer my deep urge to consume mass quantities of Oreo cookies. Mmmmmmmm.......

Wednesday, January 14, 2009

Hospital memories

Every now and then something happens that sparks a memory of the hospital for me. And they're not bad: they're happy memories - and that's what's so weird.

I caught myself in a state of nostalgia (kind of) yesterday as I dragged my O2 cart out of my car (and those who know me know that i literally drag it, bang it, drop it, and get it caught on corners and that overall, I'm not too gentle with it). As i turned it on, and put the prongs into my nose, it washed over me. There is something that I need to explain to any non-O2 users: the prongs themselves have a smell. It's not the O2 that smells, and you're not smelling the scent of whatever is caught in the prongs that came out of your nose; you're smelling a combination of the O2 and the plastic as it flows through the tubing. And it's that smell that is comforting.

Isn't that just fucking weird?! I feel it every night when I put it on as I go to bed, or as I put it on to catch my breath, or shower, or anything really. When i put it on and I smell it, I feel fine, like everything is ok. And it's weird, b/c for the longest time I was so anti-O2 it seemed. But now...i think it's safe to say that i'm pretty ok with it.

Another huge nostalgic issue for me that reminds me of the hosp (and my childhood) and makes me happy (and sad but in a good way) at the same time, is chocolate milk. Whenever I was in the hosp, and even when I was in for a month when I was 17, I always got chocolate milk. CHOCOLATE MILK = THE HOSPITAL WHICH = COMFORT and in essensce = TOTAL WEIRDNESS. I don't think this is something you can explain to anyone who has never had a prolonged or continual hosptial stay. I, like many people who read this blog, spent a lot of time in the hosp growing up, and while most people think it's sad and unfortunate, I have nothing but happy memories really. Nurses always did their utmost to make sure I was comfortable, and if giving me chocolate milk and the smell of oxygen tubing blowing up my nose is what made me happy, then so be it, right?

Granted, I know I wasn't always the most pleasant...willing...compliant ( i admit it!) patient, and I'm pretty sure when I was in the hosp at 17, I asked everyday when could I go home, and that I got to the point that I informed them that I was just going to leave on my own and not tell them, and that I did actually make a point to never be in my room when the physio lady came to beat me and when it was time for my IV meds....but regardless, I do carry fond memories. I think the whole thing has to do with the fact that I was taken care of and didn't feel like I had to do anything to reciprocate. All i had to do was sit there and get better. And not try to escape. Repeatedly.

Another thing that warms my bossom (and I think i've mentioned this) is the tupperware cover that covers your food when they bring it to you. Why? i don't know, I really don't. And i don't know why it makes me so happy either, seeing as I always hated the food they brought to me. But maybe it makes me happy b/c whatever was under that container lid thing, it was always a mystery, and that mystery was a symbol of hope b/c maybe - just maybe! - it was something I liked! I don't know. Maybe I am messed up. Maybe I'm not. Maybe I have thought about this too much. Maybe I just don't care what people think.

I think that's about it for now. I hope everyone who reads this from Canada and some of the northern States STAYS WARM TODAY! As I write this, it is -19*C. Yes. I don't know what else I can say about that. -19 just about sums it up.

Bye!


P.S. Can anyone see my counter at the very bottom of my page? Am i the only one who sees an X? Does anyone know how to fix this? I'll be sad if i've lost my number of hits!

Tuesday, January 13, 2009

Ugggggghhhhhhhhhh

*cracks open eye*

Ugh.

*rolls over and falls onto floor out of bed*

I feel like crap today. Complete and utter crap. I feel like my legs weigh a ton - like i have been at the beach all day in the water or something.They feel heavy like they are full of wet sand or something. Same goes for my arms.

I feel like a heavy, sandy, wet mess. And i'm full of thick, sticky, horrible bright green crap in my lungs today. If i cough and breathe in it makes this horrible sucking sound, but i can't bring anything up b/c it is occupied with clogging my lungs and refuses to be cleared.

Ugh.

And i have to go to rehab but I don't feel like it. And it's snowing in huge fat flakes outside, but luckily my precious Red Rocket is protected in my garage away from it all.

I kind of wish it was Friday so i could just stay here and watch The View and read Vanity Fair and drink a pop. And I don't know what to eat for lunch...I just had a nutrigrain bar.

I'm not making any sense. But at least i'm wearing sweatpants.

Monday, January 12, 2009

I'm a big girl now...!

First things first:

I saw that scary, scary movie and I slept through the night! I definitely acted like a pig by ordering a massive popcorn and coke, and i definiately stuffed half my hand in my mouth to get the popcorn as close as possible to my throat entrance, just so i could stuff the absolute maximum amount of popcorn in my mouth from the front to begin with. Not attractive, but it was dark, and everyone was so captivated by the scariness that it didn't truely matter how much of a display i made of myself. So yay!

What else? I made chicken stock today. In total it took about 6 hours. I'm hovering over the kitchen as it cools to scare away my mum who is trying to seek control of my culinary operations. I do not trust anyone to mess with my cooking, even if all said person wants to do is pour it into tupperware. Can you beleive I actually fought with my mum over what size tupperware I was going to put the stock in? TUPPERWARE PEOPLE! TUPPERWARE I SAY!

She called me 'possessive' of my soup, and i told her that i have every right to be since i made it and trust it in the care of nobody but its creator - moi. She said i didn't just make it for me but for everyone. I don't remember inviting anyone else to eat it after it's creation so we'll see just how much of my small stock of generosity is actually maintained after tonights hurtful events.

Possessive! *shock*

Yesterday I made cake. Friendship cake it's called. And yes, I shared it. I more than shared it, i handed it out like frigging candy. Go team generosity, go.

What else? That's about it. I have nothing worth saying tonight. It's supposed to get really, really, really cold at the end of the week, so we'll see how things go.

I'm going to go before i bore people. We'll see how the Tupperware War goes downstairs. Maybe i'll resort to hiding my soup and eating it in absolute secrecy....

**UPDATE**
So mum poured my soup, and all is well and peaceful in the house. The Tupperware War is over, all feelings repaired.

***UPDATE UPDATE***

Someone asked if i would share my stock recipe, so I will, b/c it's not mine, b/c i stole it from someone online. So here it is: http://allrecipes.com/Recipe/Chicken-Stock/Detail.aspx?prop31=1

Read people's reviews if you want additional ideas, I find that they help a lot. Also, i lost a lot of liquid b/c i didn't have a lid on, and then i had it half on. COVER THE STOCK WHEN IT'S SIMMERING. And don't hesitate to add additional water with a bouillon cube or powder ( i did this when the bones were cooling on a plate). If you make it, let me know how yours turns out!:)

Friday, January 9, 2009

An island of misfit toys


You know in that 1960's Christmas movie, Rudolph, when Rudolph and the elf (who wants to be a dentist) end up at The Island of Misfit Toys (where the broken and unwanted ones go)? That is very much how I felt today when I went to get my IV.

Usually, it's just me there in the back. Sometimes there's a girl (who's name I can't remember) or some little kids, and then nurses, and that's it. It's very quiet tho. Well today there were 3 other patients and their parents, and then nurses. It was a very busy day for them indeed. But as I looked around and registered what was wrong with all of us (we each have something different, but we all get IVs nonetheless), I realized that we are very much like The Island of Misfit Toys, medically and internally broken in some way, who have been sent to this place to be fixed and made functional again, all so we can go back out into the world for the next month until we have to return to be tweeked.

And as bizarre as it sounds, this is my reality and I am totally ok with it. I cannot for the life of me imagine anything but. What will happen post-tx if this is all taken away? Can i function? It's not a horrible thing really (to be cured), but mentally, to take something away from me that I've been doing my whole life.....? It's crazy to think of. I cannot fathom it, and yet, a small part can. And that small part is more afraid than excited. I dunno!

Anyways, my day was long. I had physio this morning then trekked over to the other hosp for my IV. I got there at 10:30 and they tried for an IV around 11. No luck. One poke, two poke, three poke, four, and it finally went in and worked. And then it leaked. Then the leak got fixed, and then it started leaking somewhere else, which left my arm a sticky wet mess, but overall I was fine with it. It was weird though, as I sat there reading, I coughed (as I do) and the guy beside me (the girls dad) said, "WHOA! That does not sound healthy!" *akward laugh*. I turned around and said, "Yeah! That's why I'm waiting for a LUNG TRANSPLANT!". It shut him the hell up. It's not that I was offended, b/c I wasn't, but for once instead of getting embarassed or saying, "I'm sick" i told the person up front and I could tell they felt bad. Which makes me feel great.


Anyways...


In total, my left arm got poked 3 times, and my right arm once (in the elbow). All blew and/or wouldn't thread through or got blocked b/c of scar tissue. Fun stuff. My left arm is very sore as you can imagine. I am going to try to somehow make this into an excuse to not do anything around the house....

In other news, I gained 2 lbs. I suspected this for a while, and it was proven true when i got weighed. It's not horrible and its not much, but I can definately see it. In my face. Maybe it's just the way my hair is today, that it just makes me look terrible and should make me realize to never wear my hair like this again. I dunno, but i could definately see those 2lbs sitting nicely in my jowels.

Oh, and you know how sometimes, some women do their makeup so bad that it's all you can stare at if you talk to them? I was definately that woman today too. My eyeliner looks like shit - absolute shit. it's so heavy that you could probably peel it off my eyelids; like I put it on in the dark or something. Oh well. I'm going to the movies tonight anyways with Jess so see The Unborn, so i'll probably scream half it off anyways. I havent' been to the movies in ever, and am a little scared to see how I will make it around the theatre, what with all the stairs and stuff...Hm...I guess i truely don't go enough to have considered this beforehand!

So yes, what happened today? I exercised, got stabbed four times, i gained 2lbs in my face, I stepped in a huge puddle of dog pee when I got home, and i look like a whore.

You?