Unconventional Sunday

I've decided to stay up late tonight

because i am alive

because I can

because I can breathe

Even though i have a job interveiw at 10:30 in the morning

And i need to shower before hand

And shave my legs

Which takes forever

because i like long showers

But it doesn't matter

BECAUSE I CAN BREATHE

No more shortness of breath

Nothing leaves me breathless

But I don't forget what it's like

Excitment coursing through my veins

For the next day to come

Big hair

Big make-up

for no reason other than

to celebrate the fact that I AM ALIVE

LOVE LOVE LOVE staying up late

and waking up early

No nebs to take away my morning hours

no puffers to open my airways

No oxygen to keep me going

No hours spent clearing my chest

of the relentless shit that drowns my lungs

No hours spent coughing the shit up

Only to have it quickly fill back up

Even if my tummy hurts

From days without having tummy meds

Even if i want to puke, puke, puke all over the place

I have Freedom
Just freedom

Freedom to get up and go

To flee

Hurry up

Live

Be late

Smile

Because I am alive

Off to my old rehab tomorrow to visit the peeps and see Carol and discuss participating in the Canadian Tx Games which are in August! Only have till May 15th to sign up so must must make up my mind! Mum says 'what about work?' I say, 'you only live once. what is 1 week off of work?'

Weeeeeeeeeeeeeeeeeee!

Woke up today and spent the day in my jammies on the couch with lots of tea on hand. I essentially was a sloth and did nothing.

Can't wait to crawl into bed and not have to change into jammies. I am disgusting.