tag:blogger.com,1999:blog-8479526014968221600.post5883198049223352462..comments2024-03-05T05:37:43.758-05:00Comments on The Blog Blog: RehabBreehttp://www.blogger.com/profile/09091531660961094969noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-8479526014968221600.post-16760708851856226062008-06-18T01:19:00.000-04:002008-06-18T01:19:00.000-04:00I have pretty much the same experience as you wear...I have pretty much the same experience as you wearing oxygen. But i think I've told you that before. Mine always gets caught on the springy thing on the back of the bedroom door, under the bathroom door. Or the worst and most frequent is that the dogs always seem to know exactly where to sit/stand so they are either on the tube it will get wrapped around them and get caught on them. There are two of them and i swear they tag team me. Its the worst in the kitchen. They're always there and they're either on my tube or tripping me. My canula yanks me in my nose more so than my ears. Not sure why that is, but that's what happens. I ran out of oxygen overnight last night. So i woke up rather tired this morning. But since i was out of oxygen i didn't see a need to wear a cannula that was doing me nothing. So i didn't wear it for a few hours until the guy came to refill it. But it sure felt odd not having the cannula on. I have gotten so used to wearing it that i almost have phantom cannula feelings when i don't wear it. I find myself trying to adjust something that is not there. It's weird. I guess same kind of thing when people loose a limb. But obviously not as drastic.Matt Toddhttps://www.blogger.com/profile/12136135849022014151noreply@blogger.comtag:blogger.com,1999:blog-8479526014968221600.post-82440689994150405602008-06-17T22:57:00.000-04:002008-06-17T22:57:00.000-04:00Those false alarms are so hard.....(though I have ...Those false alarms are so hard.....(though I have only seen it, not been in that situation), I am not sure if knowing you are close to top of the list helps or not....Dragonflyhttps://www.blogger.com/profile/08032258710192225915noreply@blogger.comtag:blogger.com,1999:blog-8479526014968221600.post-8261746706456105342008-06-17T16:22:00.000-04:002008-06-17T16:22:00.000-04:00Hey Beautiful You!!!I agree with Alice -- I love r...Hey Beautiful You!!!<BR/><BR/>I agree with Alice -- I love reading your blog and you usually always make me laugh! (I think sometimes you don't mean to make me laugh so I don't laugh then -- but then you make me emotional or pissed...)(At whatever you're pissed at...)<BR/><BR/>And Bree -- it <B><I>is</B></I> boring... it is <B><I>FUCKING BORING</B></I> at times while you're waiting... And no, it isn't completely horible of you... But those repetitive, boring exercises you do are so very important -- and unfortunately, as boring as they are they may get more difficult as you lose a little more lung capacity. But you'll probably also find your strength improving so maybe that will offset the capacity thing!<BR/><BR/>And just wait until you try doing a few of those exercises with your beautiful, new lungs -- the difference is mind-boggling... It's been eight years for me and I still think about it... I'm off work today and I went out and had an "Epic Burger" (a new chain by us and I find I'm OK with the name!) Then I went for a brisk walk on Michigan Avenue (downtown Chicago) and I took off my shoes and socks and splashed in the little wading pool in Millenium Park and walked back home -- at a stoplight on the way home I felt it again and my eyes started welling up -- what I felt was that not too many years ago I couldn't have possibly done this...<BR/><BR/>I'm waiting for you to feel that... And I hope you still feel it after eight years...<BR/><BR/>And I hope you're not bored to tears now... They told me I'd wait 10-14 months for my beautiful, new lungs... I waited 31 months to the day... There were people who were listed a year after me who got their lungs 6 months before me... (Allocation in the U.S. was very different than it is now...) My "job" became surviving day to day -- it's a freaking boring job -- and when it's exciting it's excitement you really don't want!!!<BR/><BR/>You won't wait that long -- you won't wait nearly that long... Keep up those excercises -- I did -- <B><I>keep up your weight!!!</B></I> I know you're a skinny-minnie and are image conscious -- but right now, pack a few pounds as insurance for recovery... I did my bestest to do all of the above -- I was in the hospital six days -- I was walking in my courtyard seven days after transplant -- I walked a half-mile (round trip) to Starbucks 10 days after transplant...<BR/><BR/>The day of my transplant I walked less than a city block to a little restaurant -- my oxygen was cranked up -- it took me 25 minutes to get from the corner of our building to the entrance of the restaurant... 3 weeks from that day I walked a mile in just over 15 minutes...<BR/><BR/>And I remember the hissing snake -- actually, <I>"bloody"</I> hissing snake ain't a bad description because often enough there was blood... And my breathing while I was waking up in bed in the morning sounded like popcorn popping, or a creek gurgling... All that goes away and the feeling is amazing...<BR/><BR/>I hope the lungs come soon too, Bree... Alice -- I think you're beautiful!!! (I think you are too, Bree...)<BR/><BR/>Love,<BR/><BR/>SteveBreathinStevenhttps://www.blogger.com/profile/13425167024998690437noreply@blogger.comtag:blogger.com,1999:blog-8479526014968221600.post-90421986909985483552008-06-17T11:51:00.000-04:002008-06-17T11:51:00.000-04:00You're SOOO funny!!! My lungs always sounded like ...You're SOOO funny!!! My lungs always sounded like a plastic bag being crumpled!! May those lungs come soon!!! The rehab programme lokks great. I could never do all of that when I was listed... would just fall over and die!Alice Vogthttps://www.blogger.com/profile/12336522233848638196noreply@blogger.com